Rethinking Access for / from Chronic Illness

In this project, we share a case study of using critical disability studies to design for chronic illness. Specifically, we draw from the
Political/Relational model of disability to explore designs for rest.
Through a 6-week design collaboration, we brought together different design perspectives and worked through tensions between utility-oriented product design approaches and critical disability approaches for access. Our process yielded three design strategies: 1) moving from designing a product to designing a provocation; 2) using mapping as a process of building collective understanding of the built and social environment; and 3) re-imagining institutional practices around access as a starting point for design. We end by unpacking tensions in our design process and sharing some reflections on how to critically design for access in HCI.

Publications

Sylvia Janicki, Julio De Pereda Banda, Lisette Romero, Sarah Harris, Xuanyu Guo, Noura Howell, and Abigale Stangl. 2025. Designing for Rest: Rethinking Access for/from Chronic Illness. In Extended Abstracts of the CHI Conference on Human Factors in Computing Systems (CHI EA ’25), April 26-May 1, 2025, Yokohama, Japan. ACM, New York, NY, USA, 10 pages. https://doi.org/10.1145/3706599.3716241 (Forthcoming)

Presentations

Sylvia Janicki. 2024. The Politics of Rest: Mapping Access for / from Chronic Illness. Presented at the WGS Conference. Spartanburg. Mar 28 – 30, 2024.